Skip to content

Empowering the Epilepsy community through data-driven advocacy

Find out if your school district posts a seizure plan.

For school districts: the free Seizure-Safe Schools packet

Everything a district needs to meet Minnesota's seizure-safety law (Minn. Stat. 121A.24) in one 7-page PDF: a seizure action plan template, drop-in Policy 516 language, a printable first-aid poster, a seizure observation log, and an adoption checklist. Free to copy, adapt, and use.

Download the packet (PDF)

What a school district told us

Your initial email that came in August was such a blessing! As I had been working through things, I had discovered that we (the district) did indeed have three students with seizure disorders and we had no formal plan in place, nor did I have the time to dedicate to finding what we would need on top of my other regular duties.

With the help of your packet, I can say that we now have a plan in place for all students and that staff know what to do. I am grateful to you for all of the work you put into this packet! It is a wonderful resource and one that I plan to keep handy for reference in the future.

District staff member, a Minnesota public school district, September 2026. Shared with permission; name and district withheld.

In the news: Minnesota Star Tribune

EDAN founder Rishik Kondadadi's commentary, "If a student had a seizure in the classroom, would your school be prepared?", ran in the Minnesota Star Tribune on July 23, 2026. It makes the case that more Minnesota schools should post seizure action plans where families can actually find them.

Three initiatives for 2026-27

Seizure-Safe Schools

Many Minnesota districts post no findable seizure plan. We are turning that finding into adoptions.

Compare your district

Medication access

Shortages, prices, pharmacy deserts, and support for reintroducing a cap on what epilepsy drugs cost families (HF 3652 / SF 3786) in 2027.

See what the cap would change

SUDEP

The state health department reports around 1,000 Minnesota deaths a year related to epilepsy or seizures, and nobody counts SUDEP. Data, a missed benefit, and a reporting law.

Explore the death certificate counts

Read the full initiatives page, including how we measure impact.

What we do

New here? Read about EDAN, what we do and why.

About 53,700 Minnesotans had active epilepsy in 2015, by CDC estimates published in 2017. The state has not yet published a direct count. What goes wrong for them is usually visible in data that exists but nobody has assembled: a district with no plan, a pharmacy that closed, a specialist three hours away, a drug whose price rose 15 percent in a year. We pull that information out of state filings, federal registries, one-PDF-per-district reports and web archives, and we publish it with the method attached, so you can check it. Then we take it to the people who can act on it. Everything here is free to use.

We started in Minnesota because we live here and because the questions were answerable. The method travels: the school audit rubric, the cost analysis and the distance mapping are all built from federal sources or state filings that every state has. Other states are next.

Who we work for

We collect the data and publish it with the method attached. The organizations that serve people with epilepsy, and the lawmakers who set the rules, decide what to do with it.

  • The Epilepsy Foundation of Minnesota, the Danny Did Foundation and other groups serving families: where the gaps are, by county and school district, for their programs and grants.
  • Legislators and their staff: sourced numbers for bills such as the epilepsy drug cost cap (HF 3652 / SF 3786) and a Minnesota SUDEP reporting law.
  • The Minnesota Department of Health's Epilepsy Program: district-level data the state does not collect itself.
  • School districts: the audit result for their own district and the free packet above.

Start here

Important

EDAN publishes data. Nothing on this site is legal or medical advice. In an emergency, call 911.